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Using profile abbreviated version to guide pediatric hematology and oncology (Pho) opportunities prioritization and conversations in seven countries

Journal Article
Published: March 10, 2025
Authors
Agulnik A.
Gonzalez-Guzman M.
Forrest H.
Kirby J.
Lewis K.
Villegas C.
Staples C.
Echeandia-Abud N.
Loggetto P.
Krull L.
Gray A.
Aponte J.
Allain A.
Bhakta N.
Metzger M.
Jeha S.
Rodriguez-Galindo C.
Friedrich P.
Abstract

Background and Aims: The Abbreviated Version of the Pediatric Oncology Facility Integrated Local Evaluation (PrOFILE) tool includes a subset of the questions and activities of the FullVersion. It aims to illustrate the PHO resource landscape for a national or regional group of facilities, guide conversations about collective strengths and opportunities, and help set priorities for collaborative work among stakeholders to improve PHO care. Methods: During the preparation phase, relevant stakeholders and a liaison are identified. In the assessment phase, local teams collect and enter data into an electronic platform. Facility-based and aggregated data analysis are conducted during the interpretation and action phase. Final score-based and descriptive reports are generated for each participating facility. The 6-8-week implementation process concludes with site visits and/or a multi-site workshop. Structured exercises are used to meet workshop goals and set priorities. Data entry and analysis are conducted using the CDC Epi Info software. Results: A total of 44 facilities providing PHO care implemented the tool since its inception in April 2019, representing seven countries in four global regions (Morocco, Brazil, Ukraine, Uganda, Pakistan, Zambia, and Lebanon). The largest cohort was comprised of 15 PHO facilities (Brazil). The average implementation process duration was 79 days (range 24-137). During the interpretation phase, seven facility-based workshops were conducted, and four regional workshops were held. A total of 173 (range 27-70) stakeholders participated during in-country prioritization exercises. Some of the most critical areas of opportunity identified included PHO nursing specialization, nursing empowerment, prospective data collection (registry), and development of cancer workforce training opportunities. Conclusions: PrOFILE Abbreviated Version assists facilities and multisite collaborations to prioritize solutions and take practical actions to improve PHO care locally and regionally. Access to this free tool is available through the St. Jude Global Alliance and is being translated to other languages (Spanish and Russian).

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DOI
10.1002/pbc.28742
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